Friends of GSD 1b

What does it mean to live with a rare diagnosis of glycogen storage disease 1b?Follow along with...
¥3,365 JPY
¥3,365 JPY
SKU: 9798218536541
Product Type: Books
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Author: Margot Lafreniere
Format: Paperback
Language: English
Subtotal: ¥3,365
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Friends of GSD 1b by Lafreniere, Margot

Friends of GSD 1b

¥3,365

Friends of GSD 1b

¥3,365
Author: Margot Lafreniere
Format: Paperback
Language: English

What does it mean to live with a rare diagnosis of glycogen storage disease 1b?

Follow along with our young protagonist Molly as she shares what it means to live with a rare diagnosis with glycogen storage disease type 1b and how one can be a good friend. In this story you will find Molly explaining in her own words to her friend Luca what it entails to live with glycogen storage disease 1b and how he can help.


The book was inspired by the author's daughter, Sophie. Sophie was diagnosed with Glycogen Storage Disease type 1b in 2019.

The author and her husband founded Sophie's Hope Foundation (SHF) shortly after Sophie's diagnosis. The mission of SHF is to drive better outcomes for those affected by the disease and ultimately cure GSD 1b. For more information please visit www.sophieshopefoundation.org.



Author: Margot Lafreniere
Publisher: Sophie
Published: 11/25/2024
Pages: 28
Binding Type: Paperback
Weight: 0.20lbs
Size: 8.50h x 8.50w x 0.07d
ISBN: 9798218536541
Audience: Ages 9-12

This title is not returnable

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