Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Hauer, Julie M.
Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Hauer, Julie M.

Caring for Children Who Have Severe Neurological Impairment: A Life with Grace

Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment...
$241.56 AUD
$241.56 AUD
SKU: 9781421409375
Product Type: Books
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Author: Julie M. Hauer
Format: Paperback
Language: English
Subtotal: $241.56
Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Hauer, Julie M.

Caring for Children Who Have Severe Neurological Impairment: A Life with Grace

$241.56
Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Hauer, Julie M.

Caring for Children Who Have Severe Neurological Impairment: A Life with Grace

$241.56
Author: Julie M. Hauer
Format: Paperback
Language: English
Description

Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child's best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills.

In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.

Parents and other caregivers will find this book to be indispensable--as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.



Author: Julie M. Hauer
Publisher: Johns Hopkins University Press
Published: 08/01/2013
Pages: 480
Binding Type: Paperback
Weight: 1.55lbs
Size: 9.10h x 6.10w x 1.20d
ISBN: 9781421409375
Audience: Young Adult

About the Author

Julie M. Hauer, M.D., is an assistant professor, medical director of Seven Hills Pediatric Center, and a staff member in General Pediatrics, Complex Care Service, at Boston Children's Hospital Harvard Medical School.




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