Get Discount 10% Off
Subscribe to our newsletters now and stay up-to-date with new arrivals, updates and deals.
MILLIONS OF TITLES TO CHOOSE FROM
Currency
Extraordinary! A Book for Children with Rare Diseases
What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing...
- $26.63 USD
$47.99 USD- $26.63 USD
- Unit price
- per
Please hurry! Only 213 left in stock
Couldn't load pickup availability
What makes a child with a rare disease extraordinary?
Author: Evren Ayik,Kara Ayik
Publisher: Kara A. Ayik
Published: 03/30/2021
Pages: 34
Binding Type: Paperback
Weight: 0.22lbs
Size: 10.00h x 7.00w x 0.09d
ISBN: 9781736034408
Audience: Ages 9-12
About the Author
Ayik, Evren: - Evren's advocacy work for people with ASMD began in 2017 when he was invited to speak at the FDA in Maryland. He went on to speak to audiences in several other states about life with ASMD to raise awareness of and support for treatments for rare diseases. In 2019, he earned the rank of Eagle Scout and was a California Boy's State delegate in Sacramento. Evren is also the winner of the prestigious TORCH Award for rare disease advocacy from Sanofi Genzyme. He plans to become a special education teacher and now attends California State University, Fresno.Ayik, Kara: - Kara has been an educator for over twenty years and believes that children must cultivate true self-worth and values to help them navigate their journeys through life. Her greatest joy and proudest accomplishment have been raising her two sons, Evren and Erol.Dale, Ian: - Ian Dale explores how visual art can amplify the stories of those less visible among us. He frequently illustrates for non-profit and faith-based organizations and publishers, and his work has been available to kids around the world. Ian lives in Southern California with his wife and two young children. See more of his work online at www.iandale.net.
Explore the answer to this question while sharing an illustrated conversation with Evren Ayik about what he has learned while growing up with his own rare disease.
Written collaboratively by mother and son, Extraordinary! A Book for Children with Rare Diseases opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader's developmental needs.
The gentle lessons draw on the co-author's firsthand experience of growing up with an ultra-rare genetic disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Extraordinary! is intended to celebrate the diversity and beauty inherent in all children around the world.
Accompanied by sensitive yet realistic, multicultural illustrations created by award-winning artist and children's book illustrator Ian Dale, the heartfelt messages introduced in Extraordinary! are intended to uplift and encourage any children living with rare diseases to live their very best lives.
Author: Evren Ayik,Kara Ayik
Publisher: Kara A. Ayik
Published: 03/30/2021
Pages: 34
Binding Type: Paperback
Weight: 0.22lbs
Size: 10.00h x 7.00w x 0.09d
ISBN: 9781736034408
Audience: Ages 9-12
About the Author
Ayik, Evren: - Evren's advocacy work for people with ASMD began in 2017 when he was invited to speak at the FDA in Maryland. He went on to speak to audiences in several other states about life with ASMD to raise awareness of and support for treatments for rare diseases. In 2019, he earned the rank of Eagle Scout and was a California Boy's State delegate in Sacramento. Evren is also the winner of the prestigious TORCH Award for rare disease advocacy from Sanofi Genzyme. He plans to become a special education teacher and now attends California State University, Fresno.Ayik, Kara: - Kara has been an educator for over twenty years and believes that children must cultivate true self-worth and values to help them navigate their journeys through life. Her greatest joy and proudest accomplishment have been raising her two sons, Evren and Erol.Dale, Ian: - Ian Dale explores how visual art can amplify the stories of those less visible among us. He frequently illustrates for non-profit and faith-based organizations and publishers, and his work has been available to kids around the world. Ian lives in Southern California with his wife and two young children. See more of his work online at www.iandale.net.
Returns Policy
You may return most new, unopened items within 30 days of delivery for a full refund. We'll also pay the return shipping costs if the return is a result of our error (you received an incorrect or defective item, etc.).
You should expect to receive your refund within four weeks of giving your package to the return shipper, however, in many cases you will receive a refund more quickly. This time period includes the transit time for us to receive your return from the shipper (5 to 10 business days), the time it takes us to process your return once we receive it (3 to 5 business days), and the time it takes your bank to process our refund request (5 to 10 business days).
If you need to return an item, simply login to your account, view the order using the "Complete Orders" link under the My Account menu and click the Return Item(s) button. We'll notify you via e-mail of your refund once we've received and processed the returned item.
Shipping
We can ship to virtually any address in the world. Note that there are restrictions on some products, and some products cannot be shipped to international destinations.
When you place an order, we will estimate shipping and delivery dates for you based on the availability of your items and the shipping options you choose. Depending on the shipping provider you choose, shipping date estimates may appear on the shipping quotes page.
Please also note that the shipping rates for many items we sell are weight-based. The weight of any such item can be found on its detail page. To reflect the policies of the shipping companies we use, all weights will be rounded up to the next full pound.
- Choosing a selection results in a full page refresh.